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TuberousSclerosis news

TS Alliance of Northern California Walking to Find a Cure for Tuberous Sclerosis Complex

Patch.com - Oct 28, 2016
On Saturday, October 29, local volunteers and supporters will be gathering to join a community walkathon called the LIDS Step Forward to Cure Tuberous Sclerosis Complex. The event takes place at the Dominican Sisters of Mission San Jose Olive Grove ...

Tuberous sclerosis complex protein 1 expression is affected by VHL Gene alterations and HIF-1α production in ...

UroToday - Nov 24, 2016
Their effects on tuberous sclerosis proteins (TSC1/2) and heat shock protein 90 (Hsp90) expressions in sporadic ccRCC are unknown. Therefore, we analyze the impact of VHL alterations and HIF-α production on the expression of TSC proteins and Hsp90 in ...

TS Alliance of Northern California Conducts Fundraiser

Patch.com - Nov 1, 2016
The event took place at the Dominican Sisters of Mission San Jose Olive Grove & Auditorium in Fremont with registration at 9:00 A.M. and the walk at 10:00 A.M. All proceeds benefit the Tuberous Sclerosis Alliance (TS Alliance). LIDS Step Forward to ...

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Tuberous Sclerosis books

The Official Patient's Sourcebook on Tuberous Sclerosis: A Revised and Updated Directory for the Internet Age

by: Icon Health Publications
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research.
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My Life with TSC

by: Evan Moss
My Life with TSC, written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope. A portion of the proceeds from this book will be donated to the Tuberous Sclerosis Alliance to fund TSC Research.
>> More info on Amazon

Princess Katie the Brave: A Story About Living with TSC

by: Jennifer Flinn

Tuberous Sclerosis Complex—those are some pretty big words, especially for a little kid. But these big words don't have to be so hard to understand. They don't have to be scary or strange—and neither does the condition they name.

Princess Katie the Brave: A Story About Living with TSC introduces young readers to this rare genetic disorder in a very approachable, child-friendly way. The story centers on a young, happy princess, Katie, who has TSC and feels "different" because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom.
>> More info on Amazon

Living with Tuberous Sclerosis

by: Chris & Partick Sheffield
A collection of 25 stories of TSC (tuberous sclerosis) children which will touch the heart. A book that seeks to inform and support families of children who suffer with TSC.
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Tuberous Sclerosis pictures on the web

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Tuberous Sclerosis videos

Tuberous Sclerosis

Tuberous Sclerosis Instructional Tutorial Video CanadaQBank.com Video: http://youtu.be/aZSzU7cZfUs.

Tuberous Sclerosis

http://usmlefasttrack.com/?p=1859 Tuberous, Sclerosis, HAMARTOMAS, adenoma sebaceum, cutaneous angiofibromas, ash leaf spots, renal angiomyolipoma, ...

Tuberous Sclerosis Complex Overview

This is an educational video providing an overview of Tuberous Sclerosis Complex. Table of Contents: Epidemiology - 1:05 Pathophysiology - 3:28 Diagnosis ...

Unlock the Cure: The Tipping Point in the Battle Against Tuberous Sclerosis Complex

To donate to Unlock the Cure, please visit http://bit.ly/1uJNSlq. Over the past ten years, tuberous sclerosis complex (TSC) research has made some amazing ...

An Overview of Tuberous Sclerosis Complex (TSC) for Physicians

This video produced by the Tuberous Sclerosis Alliance features Elizabeth Thiele, MD, PhD, Director of The Carol and James Herscot Center for Children and ...