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TuberousSclerosis news

Kitemoor Cottage opens in May for Tea and Scones for Tuberous Sclerosis Awareness Week


Blackmore Vale Magazine - Apr 25, 2017
The weekend is part of the national Tea and Scones for TSA week, which aims to raise public awareness of Tuberous Sclerosis, a rare genetic disorder that has no cure. The Tuberous Sclerosis Association is encouraging people up and down the country to ...
 

MO ABLE program opens up chances to save


Columbia Missourian - Apr 24, 2017
Schmitt's son, Stephen, was born with tuberous sclerosis, a disease that causes benign tumors to grow on some organs, and is on the autism spectrum. Stephen excitedly cheered when Aimee Wehmeier, the CEO of Paraquad, kicked off the event. Schmitt ...
 

Mighty element plays major part in autism


Spectrum - Apr 18, 2017
We first analyzed skin cells from people with fragile X syndrome or tuberous sclerosis type 1 or 2 — autism-related conditions, each caused by mutations in a different single gene. Using sophisticated biophysical techniques, we functionally dissected ...
 

Tuberous Sclerosis - premium items on eBay

NEW Tuberous Sclerosis Complex: Genes, Clinical Features and Therapeutics


 

NEW Tuberous Sclerosis Complex (Developmental Perspectives in Psychiatry)


 

NEW Tuberous Sclerosis Complex: From Basic Science to Clinical Phenotypes


 

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Tuberous Sclerosis books

My Life with TSC


by: Evan Moss
My Life with TSC, written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope. A portion of the proceeds from this book will be donated to the Tuberous Sclerosis Alliance to fund TSC Research.
>> More info on Amazon

Teddie Rocket: The Astronaut with TSC


by: Jeanette Man
Teddie Rocket is an awesome-sauce astronaut born with tuberous sclerosis complex (TSC). He proves that he can still have adventures despite this condition and uses his wildest imagination to make hospital visits less frightening. This whimsical and lighthearted story is the perfect outreach to any child affected by TSC or other special needs conditions. All proceeds from this book will be donated to Tuberous Sclerosis Alliance.
>> More info on Amazon

Princess Katie the Brave: A Story About Living with TSC


by: Jennifer Flinn

Tuberous Sclerosis Complex—those are some pretty big words, especially for a little kid. But these big words don't have to be so hard to understand. They don't have to be scary or strange—and neither does the condition they name.

Princess Katie the Brave: A Story About Living with TSC introduces young readers to this rare genetic disorder in a very approachable, child-friendly way. The story centers on a young, happy princess, Katie, who has TSC and feels "different" because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom.
>> More info on Amazon

Tuberous Sclerosis Complex: Genes, Clinical Features and Therapeutics


The only comprehensive overview of the molecular basis and clinical features of the genetic disorder tuberous sclerosis, which affects approximately 50,000 people in the US alone. Special focus is placed on novel insights into the signal transduction pathways affected by the disease as well as genotype phenotype correlations, while existing and potential therapies are also discussed in depth. The editors are leading experts in research and treatment of the disease as well as the Vice President of the Tuberous Sclerosis Alliance, the only voluntary health organization for TSC in the US.
>> More info on Amazon

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Tuberous Sclerosis videos

Tuberous Sclerosis


Tuberous Sclerosis Instructional Tutorial Video CanadaQBank.com Video: http://youtu.be/aZSzU7cZfUs.
 

Tuberous Sclerosis


http://usmlefasttrack.com/?p=1859 Tuberous, Sclerosis, HAMARTOMAS, adenoma sebaceum, cutaneous angiofibromas, ash leaf spots, renal angiomyolipoma, ...
 

Tuberous Sclerosis Complex Overview


This is an educational video providing an overview of Tuberous Sclerosis Complex. Table of Contents: Epidemiology - 1:05 Pathophysiology - 3:28 Diagnosis ...
 

Tuberous Sclerosis


 

An Overview of Tuberous Sclerosis Complex (TSC) for Physicians


This video produced by the Tuberous Sclerosis Alliance features Elizabeth Thiele, MD, PhD, Director of The Carol and James Herscot Center for Children and ...