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TuberousSclerosis news

'Sound Bites' Event to Raise Funds for Tuberous Sclerosis Alliance


PR Newswire (press release) - Feb 24, 2017
WASHINGTON, Feb. 24, 2017 /PRNewswire-USNewswire/ -- On Wednesday, March 1, the Tuberous Sclerosis Alliance (TS Alliance) will present Sound Bites, ...
 

Student impresses on visit to Washington


The Independent - Mar 11, 2017
The fifth-grader's trip to the Capitol was originally planned to meet with members of the Senate to discuss the importance of research for Tuberous Sclerosis Complex. Massie was so impressed with Blevins, he put her to work, casting votes for him on ...
 

16th Annual Comedy for a Cure® Scheduled for April 2, 2017


PR Newswire (press release) - Mar 10, 2017
UNIVERSAL STUDIOS, Calif., March 10, 2017 /PRNewswire-USNewswire/ -- On Sunday, April 2, 2017, the Tuberous Sclerosis Alliance (TS Alliance) will ...
 

Tuberous Sclerosis - premium items on eBay

NEW Tuberous Sclerosis Complex: Genes, Clinical Features and Therapeutics


 

NEW Tuberous Sclerosis Complex (Developmental Perspectives in Psychiatry)


 

NEW Tuberous Sclerosis Complex: From Basic Science to Clinical Phenotypes


 

>> Go to all great Tuberous Sclerosis deals on eBay


Tuberous Sclerosis books

Tuberous Sclerosis Complex: Genes, Clinical Features and Therapeutics


The only comprehensive overview of the molecular basis and clinical features of the genetic disorder tuberous sclerosis, which affects approximately 50,000 people in the US alone. Special focus is placed on novel insights into the signal transduction pathways affected by the disease as well as genotype phenotype correlations, while existing and potential therapies are also discussed in depth. The editors are leading experts in research and treatment of the disease as well as the Vice President of the Tuberous Sclerosis Alliance, the only voluntary health organization for TSC in the US.
>> More info on Amazon

My Life And Thoughts With Tuberous Sclerosis Complex: A story about a woman who has grown up with Tuberous Sclerosis Complex


by: Robin Marie Hudson Ms
this book is about a woman born with tuberous sclerosis complex and ADHD. She had a front right lobectomy at the age of 5.
>> More info on Amazon

Princess Katie the Brave: A Story About Living with TSC


by: Jennifer Flinn

Tuberous Sclerosis Complex—those are some pretty big words, especially for a little kid. But these big words don't have to be so hard to understand. They don't have to be scary or strange—and neither does the condition they name.

Princess Katie the Brave: A Story About Living with TSC introduces young readers to this rare genetic disorder in a very approachable, child-friendly way. The story centers on a young, happy princess, Katie, who has TSC and feels "different" because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom.
>> More info on Amazon

My Life with TSC


by: Evan Moss
My Life with TSC, written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope. A portion of the proceeds from this book will be donated to the Tuberous Sclerosis Alliance to fund TSC Research.
>> More info on Amazon

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Tuberous Sclerosis videos

Tuberous Sclerosis


Tuberous Sclerosis Instructional Tutorial Video CanadaQBank.com Video: http://youtu.be/aZSzU7cZfUs.
 

Tuberous Sclerosis


http://usmlefasttrack.com/?p=1859 Tuberous, Sclerosis, HAMARTOMAS, adenoma sebaceum, cutaneous angiofibromas, ash leaf spots, renal angiomyolipoma, ...
 

Tuberous Sclerosis Complex Overview


This is an educational video providing an overview of Tuberous Sclerosis Complex. Table of Contents: Epidemiology - 1:05 Pathophysiology - 3:28 Diagnosis ...
 

An Overview of Tuberous Sclerosis Complex (TSC) for Physicians


This video produced by the Tuberous Sclerosis Alliance features Elizabeth Thiele, MD, PhD, Director of The Carol and James Herscot Center for Children and ...
 

Unlock the Cure: The Tipping Point in the Battle Against Tuberous Sclerosis Complex


To donate to Unlock the Cure, please visit http://bit.ly/1uJNSlq. Over the past ten years, tuberous sclerosis complex (TSC) research has made some amazing ...